well Christmas has come and passed, hard to believe we are embarking on a brand new year already. Christmas was wonderful, Santa was VERY nice, and went a bit overboard in every aspect, but thats okay, this was our FIRST christmas together at home since Zach was born, christmas 2007 was spent in houston at texas childrens hospital, 2008 the boys and i were home but Harold was in korea, so it was VERY nice to have everyone home. especially since Zach was hospitalized only 5 days prior, we got very lucky that he was released after only a day's stay. i think its times like that that remind us not to get to comfortable with our health. not to take it for granted.
Zach was taken to the er on sunday morning with a 105.5 fever, he was then hospitalized, the flu test they ran came back positive, so they were treating him for the flu and pnemonia (once he was released and we had a follow up we learned much different news) at the follow up his pedi informed us the backup test done after the rapid flu test was negative, so zach didnt have the flu, he also didnt have a new case of pneumonia...but looking at his discharge note we learned he DOES have an infection, his white blood count was at 20 thousand, but no bacteria was found in his urine or his blood...once again zach was throwing us for a loop. the same day we had a ENT appointment, the doctor had NO bedside manner, never took in consideration ANY of zach's other health concerns, but wanted to immidatly do surgery on his ears to release the fluid and pressure, said that could be the cause of his infection. with this information we went for a second opinion, have an appointment on jan. 7th, im sure he will need tubes, but we needed to have a doctor who works with zach's other specialists, such as his pulmo, cardio, etc. and so we needed to put the surgery off for a bit. he has been a trooper though and hasnt let it bother him much.
Christmas was very nice, we woke all the boys up about 730 and opened gifts, mikey and chance got loads of nerf gun stuff, some wii games, light sabers for wii, light sabers just for play, some transformer stuff and star wars lego stuff. Zach got a small ride on car, some small toy/rattle type things, a wooden sound puzzle, and a vtech story book musical toy, DH got a tool box, a shirt, some fishing stuff to get him started, and a xbox 360. i was also very pampered this holiday (ill bask in it until the credit card bills show up. lol) i got a brand new high speed camera with a extra lense, filter, carrying backpack, an awesome foot spa and a cool mudd purse, for my birthday (yea got the gifts early) i got a awesome burts bees collection of 25 items, and a beautiful wooden cross.
like i said santa went overboard, but i think it was kinda trying to over compinsate for not being together last year. it was worth it.
the new year is approaching, ill be 28 in a lil over 3 days and in 4 days 2010 will be upon us! i have lots of hopes for this year,
~the health of everyone in the family, especially Zach
~get more finacially stable
~more organized
~more quality family time
some of my resolutions are
~ eliminate as many chemicals from our daily lives as possible
~eat less processed foods
~ cook more meals at home
~ work out more at the gym
~ loose weight
~ give up sodas
~ eat less sweets
~ in general, help me and the family get healthier
the family
Sunday, December 27, 2009
Thursday, December 10, 2009
Thursday, December 3, 2009
emotional post
today has been one of those days where you sit and reflect on things even though you maybe shouldnt. one thought that keeps passin thru my thoughts...when did life get so complicated? what happend to the simpler times, the carefree times? i try but cant even really recall life BEFORE, before the specialists, before the diagnosis', before the medications and surgeries, before cords,braces, and equipment....
on most days this is fine, on most days his lil smile and happy go lucky self is enough to snap me out and make my heart smile too.... today however isnt a day that falls into the better list.
over the holiday we had visitors, inlaws (i want to say its not my family...poor hubs has to take the blame for having them as family) anyway our inconsiderate brother inlaw and his family (3 kids) came down to share the wonderful holiday with us, they stayed from wed till saturday, only leaving when we kicked them out...the entire time they were here, their kids were sick (they know how we feel about having sick people near zach, we asked them many times to get their kids away from him, to wipe the snot from their kids nose, to get their kids medicen) saturday zach began to act a bit "off" so they were asked to leave....however this was only a small part of what was to come, by sunday zach's oxygen requirements went up, he began coughing and a small fever crept up...
by monday he had a fever of 103.7, and was on 1.5 litters of oxygen, 3x the amount he had been on, i called several clinics and the appointment line for our regular pedi, no luck for same day appointments. we fianlly got in with zach's pedi tuesday, we spent 4 hours in the clinic, poor zach had to endure so much, he had labs drawn, chest xray, flu and rsv swab done...the results were 2 double ear infections, both that had ruptured, pneumonia in his right lung...the "good" lung, the chest xray was so bad that the doctor really battled with admitting him to the hospital, the only thing that saved us was having home health nursing. zach recieved a very strong antibiotic injection into his lil legs, and sent us home on oral/gtube antibiotics. zach is recieving lots of chest procussion therapy (CPT) extra breathing treatments, lots of nasal suctioning and is definatly nowhere near baseline, actually on 2 litters of o2 now :( were still struggling to keep him out of the hospital, and im still kicking myself for ever letting "those people" inside, to top it off, we have recieved NO apology, no call from them, my mother in law did call 3 days after he got sick to "check on him" but thats IT! seriously...do they just not get it? honestly it angers me but it HURTS that people are that self centered that they cant see beyond theirselves. they have officially been unwelcomed to come back to our house.
please keep him in your thoughts and prayers to get well soon! i miss my happy little boy.:(
on most days this is fine, on most days his lil smile and happy go lucky self is enough to snap me out and make my heart smile too.... today however isnt a day that falls into the better list.
over the holiday we had visitors, inlaws (i want to say its not my family...poor hubs has to take the blame for having them as family) anyway our inconsiderate brother inlaw and his family (3 kids) came down to share the wonderful holiday with us, they stayed from wed till saturday, only leaving when we kicked them out...the entire time they were here, their kids were sick (they know how we feel about having sick people near zach, we asked them many times to get their kids away from him, to wipe the snot from their kids nose, to get their kids medicen) saturday zach began to act a bit "off" so they were asked to leave....however this was only a small part of what was to come, by sunday zach's oxygen requirements went up, he began coughing and a small fever crept up...
by monday he had a fever of 103.7, and was on 1.5 litters of oxygen, 3x the amount he had been on, i called several clinics and the appointment line for our regular pedi, no luck for same day appointments. we fianlly got in with zach's pedi tuesday, we spent 4 hours in the clinic, poor zach had to endure so much, he had labs drawn, chest xray, flu and rsv swab done...the results were 2 double ear infections, both that had ruptured, pneumonia in his right lung...the "good" lung, the chest xray was so bad that the doctor really battled with admitting him to the hospital, the only thing that saved us was having home health nursing. zach recieved a very strong antibiotic injection into his lil legs, and sent us home on oral/gtube antibiotics. zach is recieving lots of chest procussion therapy (CPT) extra breathing treatments, lots of nasal suctioning and is definatly nowhere near baseline, actually on 2 litters of o2 now :( were still struggling to keep him out of the hospital, and im still kicking myself for ever letting "those people" inside, to top it off, we have recieved NO apology, no call from them, my mother in law did call 3 days after he got sick to "check on him" but thats IT! seriously...do they just not get it? honestly it angers me but it HURTS that people are that self centered that they cant see beyond theirselves. they have officially been unwelcomed to come back to our house.
please keep him in your thoughts and prayers to get well soon! i miss my happy little boy.:(
Monday, November 16, 2009
whispers in my head
havent had a lot of time since we started homeschooling to sit and pour my thoughts out....not to say i dont have any to spill out though....that would scare me ...the thought that my brain was on a (gasp) break?? eek....never fear...lots of pointless thoughts are about to be poured out...
so some thoughts on homeschooling, some days i HATE it, i HATE not having ME time....now how selfish is that? seriously...i mean is that REALLY something that should bother me? well it does. i want to be able to sit and watch tv, to surf the net, to go shopping with NO kids in tow....
and then i sit back and take another look around and realize that THOSE small wants cant compare to what the boys AND me are gaining. the boys ARE listening, were gaining family time, were gaining learning experiences everywhere...and in the long run were gaining time...time thats not wasted in school lines waiting to pick them up, time not wasted in traffic coming home, time not wasted waiting to go places when school is on break. we arent tied to any schedule, but what we make. i find that i put more expectations (stress) on myself than probably anyone else would...this is good i guess...keeps me accountable, helps me stay on target for teaching the boys. ive been using our library like crazy checking out books on homeschooling for me, crafts, activities, books that help with science, social studies...its amazing what resources they have. its endless.
Zach has been doing wonderful with his crawling and exploring, IF you can get him motivated he is GONE. he LOVES to kick/hit our entertainment center, chase wipe packages down and play with paper. he still isnt much for real toys, but slowly he is exploring them. he is such a joy, and we are so blessed to have him, for the most part i can always look on the bright side, but there are occasions that i just want to scream! i mean he is 2!!! he should be running playing, saying "no" and "hungry" and so many other words, and he "should" be eating by mouth....a parent shouldnt have to rely on a surgically placed plastic tube in his stomach to feed their child! i shouldnt need a syringe and extension cord to hook up zach's feeding and pour the liquid pediasure thru the tube....what "normal" baby/child hits his head HARD daily to say "im tired"? he leaves marks on his face from this, and just keeps going. some days i want a normal child......but then i have to remind myself...then he wouldnt be zach, God gave us Zach, as he is, perfect in God's eyes, for a reason....and thats an honor, and a true blessing. zach will remain innocent longer than most, zach will communicate with his heavenly friends that he can see and we cant, for years longer than others would, zach will remain my cuddly baby just a bit longer... i know this...and yet...some days i want to scream. in the end, im human, im not perfect and i break....they make a wonderful medication...zoloft, that helps with the anxiety of life...:) this helps the optimism last a bit longer than it normally would....(though im really debating with removing the word normal from our vocabulary).
our christmas deco is partially up...yes its WELL before thanksgiving and its up...there is one reason..christmas is the season of peace and always makes me happy, last week i learned from the hubs that instead of deploying in 2011 it looks like it could be 2010 now...depression hit, only i have no time to worry, or grieve, or any of that...so the next best thing...denial and redirecting my emotions/energy...decorations!!
speaking of army, and deployments, these are the times when i want to lead a civillian life, i want out. hubs has been in for 9 years now...that means WE have been in for 9 years, for many of those years i never thought of life outside of the army...between the last deployment and life with the boys on my own in the past couple years has stainned my view, however it really doesnt seem plausable between zach's medical needs, doctor visits, medical supplies, therapies and the boys medications and therapies and such our out of pocket with most insurance would be insane, and with the economy, its not that its impossible but its definatly scary. for hubs the "safety net" is to stay in. so for now there is alot that i push aside on my "plate", but the army has been good to us, medical wise, housing wise, financially stable for the most part.i just HATE HATE HATE the deployments, the seperations, the strains on the family, on the marraige, on the kids. sigh. enough of that soapbox.
so some thoughts on homeschooling, some days i HATE it, i HATE not having ME time....now how selfish is that? seriously...i mean is that REALLY something that should bother me? well it does. i want to be able to sit and watch tv, to surf the net, to go shopping with NO kids in tow....
and then i sit back and take another look around and realize that THOSE small wants cant compare to what the boys AND me are gaining. the boys ARE listening, were gaining family time, were gaining learning experiences everywhere...and in the long run were gaining time...time thats not wasted in school lines waiting to pick them up, time not wasted in traffic coming home, time not wasted waiting to go places when school is on break. we arent tied to any schedule, but what we make. i find that i put more expectations (stress) on myself than probably anyone else would...this is good i guess...keeps me accountable, helps me stay on target for teaching the boys. ive been using our library like crazy checking out books on homeschooling for me, crafts, activities, books that help with science, social studies...its amazing what resources they have. its endless.
Zach has been doing wonderful with his crawling and exploring, IF you can get him motivated he is GONE. he LOVES to kick/hit our entertainment center, chase wipe packages down and play with paper. he still isnt much for real toys, but slowly he is exploring them. he is such a joy, and we are so blessed to have him, for the most part i can always look on the bright side, but there are occasions that i just want to scream! i mean he is 2!!! he should be running playing, saying "no" and "hungry" and so many other words, and he "should" be eating by mouth....a parent shouldnt have to rely on a surgically placed plastic tube in his stomach to feed their child! i shouldnt need a syringe and extension cord to hook up zach's feeding and pour the liquid pediasure thru the tube....what "normal" baby/child hits his head HARD daily to say "im tired"? he leaves marks on his face from this, and just keeps going. some days i want a normal child......but then i have to remind myself...then he wouldnt be zach, God gave us Zach, as he is, perfect in God's eyes, for a reason....and thats an honor, and a true blessing. zach will remain innocent longer than most, zach will communicate with his heavenly friends that he can see and we cant, for years longer than others would, zach will remain my cuddly baby just a bit longer... i know this...and yet...some days i want to scream. in the end, im human, im not perfect and i break....they make a wonderful medication...zoloft, that helps with the anxiety of life...:) this helps the optimism last a bit longer than it normally would....(though im really debating with removing the word normal from our vocabulary).
our christmas deco is partially up...yes its WELL before thanksgiving and its up...there is one reason..christmas is the season of peace and always makes me happy, last week i learned from the hubs that instead of deploying in 2011 it looks like it could be 2010 now...depression hit, only i have no time to worry, or grieve, or any of that...so the next best thing...denial and redirecting my emotions/energy...decorations!!
speaking of army, and deployments, these are the times when i want to lead a civillian life, i want out. hubs has been in for 9 years now...that means WE have been in for 9 years, for many of those years i never thought of life outside of the army...between the last deployment and life with the boys on my own in the past couple years has stainned my view, however it really doesnt seem plausable between zach's medical needs, doctor visits, medical supplies, therapies and the boys medications and therapies and such our out of pocket with most insurance would be insane, and with the economy, its not that its impossible but its definatly scary. for hubs the "safety net" is to stay in. so for now there is alot that i push aside on my "plate", but the army has been good to us, medical wise, housing wise, financially stable for the most part.i just HATE HATE HATE the deployments, the seperations, the strains on the family, on the marraige, on the kids. sigh. enough of that soapbox.
Wednesday, November 11, 2009
bad blogger
yep, i am a bad blogger. lots has happend since the last post. first, Zachy had a wonderful birthday, we celebrated his party on nov. 1st, on oct. 28th, 2 days after he turned 2 zach did the most amazing thing! ZACH CRAWLED! he moved his legs 2 movements actually moving himself. it was so amazing. my lil boy did it! so proud. he has worked VERY hard for that and im just tickled pink!
Zach's party was nice, he had great company, awesome gifts, and some very yummy food thanks to our wonderful friend, Nadine. very much a success.
on novemeber 5th a tragic event took place here at fort hood, a army major, who was a psychologist and also a muslim shot and killed 13 people and injured 29 i believe on fort hood. it was a very emotional and scary day,very unreal.
Zach saw his pulmonologist today,the appointment went wonderfully, i was very happy. zach's sat's and lungs were very good. we were able to wean down his lasix (a fluid reduction medication) from 2x day, 3 day week to 2x day 2x week, it may seem small, but just a few months ago we were at 2xday 7x week, so its working its way down. were hoping in about 6-8 months we may actually be OFF oxygen!! that would be incredible. we also had a blood chemistry done today, i guess the results will be back in a few days, this checks his potassium and sodium levels, were thinking we may be able to decrease those medications as well since the lasix is decreased. zach's weight was down again...he has been getting more mobil and using more calories so its normal for him to loose weight, but he needs more calories to help with growth of lungs and such. so zach went from 760ml/calories of pediasure a day to 1000ml/calories a day. he was 24lbs 10 ounces and 34 inches long.
we cancelled his sweat test for tomorrow, it wasnt the correct procedure we were looking for, this test wouldnt determin how well or how much he sweat, but more, how much of a certian chemical is in his sweat to determin if he has cystic fibrosis, and we know he doesnt, what we are trying to determin is DOES he sweat? and if so, how much? ive never seen him sweat. so for now were back to the drawing board.
42 days until christmas! i am already in the holiday mood, ready to put up our tree, ready to decorate, sip on hot cocoa, sing songs and just bask in the season. i love christmas time! i doubt ill be able to hold out until thanksgiving to put up our tree. :)
every year people make resolutions, most never happen, even with the best of intentions, im guilty. my usual is to "lose weight" and trueth be known, i probably gained instead. this year however i want to correct a few bad habits we got into about 2 years ago, after we had zach and we were living at the ronald mcdonald house, we didnt cook, many nights food was provided by various people and we would grab a bite to eat in the food court in the hospital, we did this day in and day out for months, since then its been much easier in my mind to grab food out rather than make anything, i want to break this habit for many reasons, i would love to have a dinner schedule, family time, save the money, try new foods, and im sure it would help to loose some weight. so im going to try to start this resolution now and hopefully it will stick in the new year.
Zach's party was nice, he had great company, awesome gifts, and some very yummy food thanks to our wonderful friend, Nadine. very much a success.
on novemeber 5th a tragic event took place here at fort hood, a army major, who was a psychologist and also a muslim shot and killed 13 people and injured 29 i believe on fort hood. it was a very emotional and scary day,very unreal.
Zach saw his pulmonologist today,the appointment went wonderfully, i was very happy. zach's sat's and lungs were very good. we were able to wean down his lasix (a fluid reduction medication) from 2x day, 3 day week to 2x day 2x week, it may seem small, but just a few months ago we were at 2xday 7x week, so its working its way down. were hoping in about 6-8 months we may actually be OFF oxygen!! that would be incredible. we also had a blood chemistry done today, i guess the results will be back in a few days, this checks his potassium and sodium levels, were thinking we may be able to decrease those medications as well since the lasix is decreased. zach's weight was down again...he has been getting more mobil and using more calories so its normal for him to loose weight, but he needs more calories to help with growth of lungs and such. so zach went from 760ml/calories of pediasure a day to 1000ml/calories a day. he was 24lbs 10 ounces and 34 inches long.
we cancelled his sweat test for tomorrow, it wasnt the correct procedure we were looking for, this test wouldnt determin how well or how much he sweat, but more, how much of a certian chemical is in his sweat to determin if he has cystic fibrosis, and we know he doesnt, what we are trying to determin is DOES he sweat? and if so, how much? ive never seen him sweat. so for now were back to the drawing board.
42 days until christmas! i am already in the holiday mood, ready to put up our tree, ready to decorate, sip on hot cocoa, sing songs and just bask in the season. i love christmas time! i doubt ill be able to hold out until thanksgiving to put up our tree. :)
every year people make resolutions, most never happen, even with the best of intentions, im guilty. my usual is to "lose weight" and trueth be known, i probably gained instead. this year however i want to correct a few bad habits we got into about 2 years ago, after we had zach and we were living at the ronald mcdonald house, we didnt cook, many nights food was provided by various people and we would grab a bite to eat in the food court in the hospital, we did this day in and day out for months, since then its been much easier in my mind to grab food out rather than make anything, i want to break this habit for many reasons, i would love to have a dinner schedule, family time, save the money, try new foods, and im sure it would help to loose some weight. so im going to try to start this resolution now and hopefully it will stick in the new year.
Saturday, October 24, 2009
memory lane
hey Zach i just wanted to sit here and reminiss with you for a bit. 2 years ago today i had a non-stress test, i had been having them 2x week for you, i didnt mind too much though, i got to check on you and i always got a small ultrasound after too, many of those times we got to take home pictures of you. the radiologist who we usually saw would even get us a glimps of you in 3D....you sure were a cutie(still are)...but on this appointment i was having many contractions, none apparently were of concern, but i did mention it to the dr i saw, i didnt care for the doctor, she didnt listen to me, she didnt understand the pain id been having in my back and hips for the last couple days, i asked her what would happen if you came early and we werent in houston yet....she told me "you still have 7 weeks, but im sure we could handle that situation" i left from her office to the immunizations office....my mission was to get a flu shot, i knew i needed it, i knew i needed it before you came here.
it would only be about 4 hours after that appointment when your daddy took me to labor and delivery to get checked out. this is where the rollercoaster really started. i was in labor....7 weeks 1 day early, at the local hospital...not in houston at texas childrens. i recieved medication to try to slow labor, but it was no use, you had a plan. the doctors scrambled in to get things ready we HAD to go...if we stayed you would have virtually no chance at all.....if we left we had risks...they informed me that being in the helicopter had its own risks...having had previous c-sections there was a risk of placental abruption...this could lead to your death as well as mine possibly. there was also NO room to deliver you if labor progressed in the helicopter. what choice did i have? we signed the release forms and i kissed your brothers and your daddy goodbye and headed to houston. daddy got things squared away here at home as best he could in such short notice and he headed up to houston. by morning Dr. Carpenter had made his decision after having an amnio and finding maternal blood in your fluid...placental abruption had begun, it was time to get you OUT and let you show us what you could do.
two years ago today was my last day being pregnant with you, was my last day of knowing you were okay,. you were safe....as long as you stayed inside you didnt need your lungs to breathe, you didnt need to be hooked to a vent. 2 years ago today lil guy you showed us all how things will be done in ZACH time.
so hard to believe you will be 2 TOMORROW! your amazing Zach! we love you so much, and cant imagine life without you. were so blessed that you are so strong and such a fighter. were so Blessed God has blessed us with you, my lil zachy-poo.
it would only be about 4 hours after that appointment when your daddy took me to labor and delivery to get checked out. this is where the rollercoaster really started. i was in labor....7 weeks 1 day early, at the local hospital...not in houston at texas childrens. i recieved medication to try to slow labor, but it was no use, you had a plan. the doctors scrambled in to get things ready we HAD to go...if we stayed you would have virtually no chance at all.....if we left we had risks...they informed me that being in the helicopter had its own risks...having had previous c-sections there was a risk of placental abruption...this could lead to your death as well as mine possibly. there was also NO room to deliver you if labor progressed in the helicopter. what choice did i have? we signed the release forms and i kissed your brothers and your daddy goodbye and headed to houston. daddy got things squared away here at home as best he could in such short notice and he headed up to houston. by morning Dr. Carpenter had made his decision after having an amnio and finding maternal blood in your fluid...placental abruption had begun, it was time to get you OUT and let you show us what you could do.
two years ago today was my last day being pregnant with you, was my last day of knowing you were okay,. you were safe....as long as you stayed inside you didnt need your lungs to breathe, you didnt need to be hooked to a vent. 2 years ago today lil guy you showed us all how things will be done in ZACH time.
so hard to believe you will be 2 TOMORROW! your amazing Zach! we love you so much, and cant imagine life without you. were so blessed that you are so strong and such a fighter. were so Blessed God has blessed us with you, my lil zachy-poo.
Friday, October 2, 2009
fall time
well there has been alot to update on since the last update.....Harold is HOME! he had many delays but did finally come home Saturday the 26th of sept. its been a crazy week adjusting to new routines and trying to establish each others "roles" in the family, but were ironing out the few creases and i think it should go smoothly.
right before Harold came home Zach was put back on antibiotics for tonsilitis, his poor throat was COVERED in pus! yuck! luckily after about 24-48 hours of the med he was back to himself. he is such a trooper and so amazing!
Since Dad has been home zach has been up to many NEW things, he ate 2 goldfish today, they were crushed up, but he ate them:) he dipped his face into his bath water to lick it:) he dipped his hand in the bath and licked it, he licked dad's shirt, the couch and tried to lick one of his toys. he is slowly begining to show signs of crawling, he moves one knee at a time and is slowly getting there, but slow and steady wins the race. he has been spending more time in his baby walker and is now manuevering it back and forth!!! yippie:) we have also discovered that zach hits himself in his head alot to express a need/want...for instance if he is in a chair or stroller and starts, we can say "you want OUT" and he will smile and kick, if he is laying on the floor sometimes its due to a dirty diaper, or wanting to be picked up. finally WE are able to understand a lil...poor guy im sure he was fusterated with us not knowing what he was trying to say.
Micheal and Chance both had parent teacher confrences the other day, micheal's was the worse of the two, his IEP doesnt appear to be in use at all, his teacher even asked me how we decided part of it in the ARD meeting, so obviously that means its not being implemented, or she isnt doing it correctly, then came time to look at his work...apparently math is done in the mornings, and his math book was barely used, she actually asked mikey what he does during math time....my thought was "WHAT do YOU SEE him doing at math time?" ugh. Chance's meeting went better, basically we were told what we know, he is above his peers, he knows numbers to at least 100, all abc's, all colors, all shapes except rectangle confused him, and the letters q and g confused him. she is wanting to try to get him more advanced work. he is a "crasher" and i figured that would be a issue, he does this at home with us, and apparently its a "normal" thing for kiddos with sensory issues, he is trying to "figure out where he is in space" and crashing into things helps him with that. the problem with that in school is, he is disrupting the class, he is bumping into kids, and basically causing CHAOS!
so after a lot of thought, and talk with Harold we have decided to homeschool Mikey, im on the fence with chance....though im thinking it would make more sence to just do them both...they could help each other and kinda keep things more organized that way. so ive gottan a few small workbooks, some good websites, advice from some people and some printouts and we will be starting this probably in the next couple weeks. i have to keep reminding myself its for them, to help with the learning....i personally sure do like my alone time for a bit in the day, but this will be better for them, and maybe i can figure out a way to have a bit of quiet time too.
well im off to bed:) night
right before Harold came home Zach was put back on antibiotics for tonsilitis, his poor throat was COVERED in pus! yuck! luckily after about 24-48 hours of the med he was back to himself. he is such a trooper and so amazing!
Since Dad has been home zach has been up to many NEW things, he ate 2 goldfish today, they were crushed up, but he ate them:) he dipped his face into his bath water to lick it:) he dipped his hand in the bath and licked it, he licked dad's shirt, the couch and tried to lick one of his toys. he is slowly begining to show signs of crawling, he moves one knee at a time and is slowly getting there, but slow and steady wins the race. he has been spending more time in his baby walker and is now manuevering it back and forth!!! yippie:) we have also discovered that zach hits himself in his head alot to express a need/want...for instance if he is in a chair or stroller and starts, we can say "you want OUT" and he will smile and kick, if he is laying on the floor sometimes its due to a dirty diaper, or wanting to be picked up. finally WE are able to understand a lil...poor guy im sure he was fusterated with us not knowing what he was trying to say.
Micheal and Chance both had parent teacher confrences the other day, micheal's was the worse of the two, his IEP doesnt appear to be in use at all, his teacher even asked me how we decided part of it in the ARD meeting, so obviously that means its not being implemented, or she isnt doing it correctly, then came time to look at his work...apparently math is done in the mornings, and his math book was barely used, she actually asked mikey what he does during math time....my thought was "WHAT do YOU SEE him doing at math time?" ugh. Chance's meeting went better, basically we were told what we know, he is above his peers, he knows numbers to at least 100, all abc's, all colors, all shapes except rectangle confused him, and the letters q and g confused him. she is wanting to try to get him more advanced work. he is a "crasher" and i figured that would be a issue, he does this at home with us, and apparently its a "normal" thing for kiddos with sensory issues, he is trying to "figure out where he is in space" and crashing into things helps him with that. the problem with that in school is, he is disrupting the class, he is bumping into kids, and basically causing CHAOS!
so after a lot of thought, and talk with Harold we have decided to homeschool Mikey, im on the fence with chance....though im thinking it would make more sence to just do them both...they could help each other and kinda keep things more organized that way. so ive gottan a few small workbooks, some good websites, advice from some people and some printouts and we will be starting this probably in the next couple weeks. i have to keep reminding myself its for them, to help with the learning....i personally sure do like my alone time for a bit in the day, but this will be better for them, and maybe i can figure out a way to have a bit of quiet time too.
well im off to bed:) night
Subscribe to:
Posts (Atom)
playlist
