time to breath, reflections

Zach's surgery has been rescheduled...maybe it wont even need to be done. wouldnt that be awesome? if everyone prayed on it and Zach's body was able to re-absorb the blood into his body rather than his head, and he didnt need surgery? just a thought. hint hint. its 1213am, the house is soooo quiet, its wonderful. let me back up.

Zach's doctors came in about 3pm and told us that surgery was going to wait, they wanted to do another head CT on sunday and see the results (so see there is plenty of time to send your prayers up) and then depending on that he may or may not need surgery next week. luckily we have the luxery of a bit of time since the blood has been on his head for weeks, or months as the neuro surgery doc said, its not a rush rush thing, but it does need to relieve the pressure from his poor lil brain. so anyway me and dad switched places and i came home. it was time to be home. though dont think for a moment i got to relax...pppffttt. not till about 1030pm.

i arrived home at 5pm with boys in back seat of the van fighting...whats new? and i came in to see my house....kinda messy. in dads defense it wasnt bad, just some laundry and dishes and crums on the table and sweeping and cleaning the boys bathroom....and clearing some of the counter space. so i do this then i have to go to UPS warehouse cause there was a miscommunication for delivery...blah. so i go and guess what? the warehouse is about 20 minutes away...are you kidding me!? so i get there adn come back and its time to pick my inlaws up to take them to dinner (something my husband was suppose to do but since im home....eeehh) and by the time we get home its 9pm. time to bathe boys and brush their teeth and rest.

i sat on the computer and thought, and did some research for zach. it appears zach has been having myoclonic seziures, these are small twitch like seziures. also he has had the absent seziures, where he just stares off, and the atonic seziures, where his body goes limp. im trying my best to get on top of all this lingo so i can communicate with the doctors, when you know what your talking about they listen better. sooo these are the types i believe he has had. and thinking back, i think he has had these for a while. bless his heart. back in december while we were in houston at texas childrens they did an eeg on him for research i believe, anyway i asked the results and remember them saying they showed abnormal brain activities but they said there was no way to tell at that age what exactly that ment....here is my hunch...either he had blood leaking onto his brain then making him have the abnormal activites (same words they used this time to describe the seziures) or his seziures arent completely from the blood. zach has twitched for a long while, but shoot i didnt know that wasnt normal, i mean its not full jerky movement, just while he is resting and such. this could also explain why he sometimes sleeps so long...he has the post seziure stuff (cant recall words right now) and it makes him sleepy. i need to pay more attention to these areas and keep a better track.

so anyway harold registered mikey for school today, new school same district since we moved, anyway they wanted to register chance for first grade too....lol they thought they were twins...wouldnt that be a hoot,...chance in first grade at 3.5 years old. anyway this seriously gave me a chuckle today. but back to mikey, his new school has a dress code...how do i feel about this? im okay with it for older kids i guess, i understand the reasoning and such, but for younger ones i dont get it. but it will be okay. i hear it will make my morning routine easier...and i guess judging by our life...easier is better.

well its 1230am and im finally relaxed enough to think of sleep. mmmmm a real bed not a cot from the hospital, here i come bed....night.