still here

i havent forgottan about the blogging world, in fact ive been making changes to our blog and updating blogs i read and finding new resources, i just havent had it in me to update my own, sad hu?

lets start with easter i guess, i hadnt really planned much and was looking forward to some rest and a relaxing weekend....but then it happend....i get a call that my brother and sister in law and their 3 kiddos are coming up and want to do easter, so okay im like this may not be that bad. they know that due to zach being so sick and the nurses being here that there isnt room to house more, so they tell me they are looking into a hotel. my mother in law tells me they will keep the kids so my brother in law will only have to pay for a single bed in a hotel...long story short, my mother in law was full of BS as always and backed out of keeping the older 2 boys and i end up having to watch them thru 2 nights. okay so your thinking its not that bad, and your right, but its the principle of the thing. heres the kicker, right after they get here mikey begins to throw up everywhere, i think im coming down with pink eye (turned out to be only allergies) and their kiddos just got over lice....so yea im a lil stressed. in the end i ended up telling my mother in law off, she also was caught talking some crap about me and i guess i had just had enough over the years with her. so needless to say we arent speaking anymore and it feels great!

so lets skip ahead a week...we had mikeys birthday party on the 18th, a sunday. our nurse, Alex let us have it at her house, she grilled some pork chops, hot links, hot dogs, and hamburgers , the kids played in a inflatable bounce house she had and had a blast. mikey had a starwars cake and bakugan napkins and plates, lol, silly boy. he is 7 years old now, man do i feel old!

i was trying to change the layout to my blog and i accidentally deleted all the blogs i follow...i tried to get them all back, but i know im missing a few, if you see yours isnt here and you would like it to be, just leave me a message with your information:)

i tried to break down my list of blogs i follow and links by subjects, take a look on the right side of the page...feel free to check them out:)

yesterday zach had appointments in temple, he saw the pulmonologist and the ortho doc for his scoliosis. ill start with the pulmo appointment first, zach weighed in at 28lbs 5 ounces and was 32.5 inches long:) big boy. he did great for the doc and his lungs sounded great! the resident thought we may be able to come off oxygen at least for a couple hours during the night, however the doc wasnt okay with this for now, with zach pulmonary hypertension, so for now we will stay on the oxygen, but we are weaning down on his diuretics and we will go back in a month to see the progress:) now on to the other appointment, it went well too, zach had his xray and we went over the results, as of now his scoliosis isnt progressing:) he is still at a 20 degree curve, same as 6 months ago, so for now we will watch and wait, if it doesnt progress he may only need a brace, that would be wonderful. so we left the clinics in good spirits and moods.

zach sure is getting to be a big boy, hard to believe in about 3 days he will be 18 months old! he is attempting to crawl, trying to get his knees under him to go, so far no luck but he is trying! im so proud of him. we go see the genetisist on the may 6th in austin and we will see what they think, if there is an underlying issue with zach or not. so far i have been researching and pks...cant remember how to spell it right now, www.pkskids.org i think is a website on it, sounds like it may be something to look into, zach has a lot of characteristics of it, but who knows.

today is already thursday, i cant believe it, but at the same time, im sooo happy, its almost the weekend again! im ready. k time to do some chores, ill try to update more often.