ARD meeting and therapies

well its been a few days, Zach seems to be doing much better!! he hasnt had (knock on wood) fever since yesterday morning, and even then it wasnt more than 99, such a relief!! his button leaked some yesterday and just barely today, so that is also progress!! i think it was a bug and its passed. zach is on day 3 of his antibiotics, im sure this is helping as well.
since saturday night we have had nothing but trouble with the oxygen concenrators, on sunday night i got a replacement, only to have it stop working yesterday and again he was placed on his oxygen tanks, today we recieved yet another concentrator, a brand new one, new style, with a pediatric flow meter attached, so i really really hope this one lasts!!

Zach had ocupational therapy today with ECI, he "wow'd" linda, the OT again, she was amazed at his ability to sit, even though today he was doing a very poor job at it....he was too hyper and too wiggly, she said he was doing great. he loves to play "row row row your boat" this is where i sit him up and hold his hands, when the song is sung he rocks himself front to back, its so cute, and it is building his arm stregnth..sneaky sneaky. Zach got to "ride" Rowdy, a inflatable bouncy horse type thing in therapy today, he seemed to really enjoy sitting on it, ll upload some photos soon.

Mikey had his ocupational therapy today as well, this will be his last session until next thursday, thanks to the holiday we will get this thursday and next tuesday "off" so im pretty happy, though it may prove to be a not so good thing, as he wont get the sensory imput he does in therapy, and without this he is more easily aggervated and distracted. therapy has really proven to be a big help for him.

i met with a lady from mikey's school today to discuss the upcoming ARD meeting and to turn in mikey's eval. report from the psychologist today....while talking with her she threw me for a small loop...im not up on all the terms of the ARD stuff just yet...if there are any moms here that are, please leave your imput, i dont want to mess mikey out of getting help. she mentioned to me wanting to just label mikey as ADHD and calling it OHI (other health impairment) instead of using the PDDNOS diagnosis, saying that if she used this he would be put into PCCD(?) classes...i asked what this ment she said its a smaller class for kids who arent as high functioning...part of me thinks this is where he needs to be...not that i want to hold him back at all...but i do want him to get the services he needs, and i know he works much better in his after school tutoring since its a more one on one time with the teacher. im afraid if the school uses the OHI term mikey wont recieve much help and if he doesnt get a good teacher wont stand a chance....but like i said i dont know how things work, anyone dealt with any of this before? if it helps we are in texas. thanks

Zach had another therapy this afternoon, this one he was just as wobbly and hyper, he was in such a good mood, it was nice to see. he is trying so hard to crawl, its amazing, his legs know what to do, but his upper body doesnt.

mikey had a school program tonight, he was singing some fun summer songs, and seemed to enjoy himself a lot. the only on who did NOT enjoy?....Zach..he screamed his head off, with tears rolling down his face...the loud noise of the singing, clapping and cheering was too much for him....guess that means no rock concerts for a couple years....darn ;)

i have a small update on Kayleigh Freeman, the "one pound miracle" her parents talk about her memorial service on their latest blog entry and have photos and video they put together, some of the photos are from the wonderful organazation NILMDTS (now i lay me down to sleep) they are beautiful. the faith and will this family has is just amazing, please continue to lift them in prayer!. http://kayleighannefreeman.blogspot.com/

our nursing schedule is still a work in progress, the full time day nurse i thought we had already to go, isnt working here, she isnt even doing a day a week at the moment, i dont have a clue what happend. the nurse we have instead for now, im told she wont be a our primary but is filling in, is great, i dont know who will come on as our primary or when. ive actually been thinking the last few days about not having a day nurse, or at least not 5 days a week, maybe something like 2 days a week or less, i dont know. all i know is im kinda tired of guessing who will be here, explaining all of zach's history and his needs/wants, dislikes/likes over and over, when in the end it would almost be easier to just do everything myself. at least without a day nurse i would have my house to myself during the day other than therapies, i wouldnt have to worry about that schedule, just do what i need. though there are times when it is nice to have the help. i dont know, i dont want to make a hasty decision, but by the end of the month if our nursing schedule isnt set in stone i think ill be making some sort of decision on this matter.

our ARD for mikey is next week, please if you have anything to add, im taking all suggestions, things to ask for in his IEP, things not to agree too, i dont want to go in uninformed, its like going to a car dealership alone...they see "female...dumb" and automatically see $$$. Thank you for your time:)