today has been one of those days where you sit and reflect on things even though you maybe shouldnt. one thought that keeps passin thru my thoughts...when did life get so complicated? what happend to the simpler times, the carefree times? i try but cant even really recall life BEFORE, before the specialists, before the diagnosis', before the medications and surgeries, before cords,braces, and equipment....
on most days this is fine, on most days his lil smile and happy go lucky self is enough to snap me out and make my heart smile too.... today however isnt a day that falls into the better list.
over the holiday we had visitors, inlaws (i want to say its not my family...poor hubs has to take the blame for having them as family) anyway our inconsiderate brother inlaw and his family (3 kids) came down to share the wonderful holiday with us, they stayed from wed till saturday, only leaving when we kicked them out...the entire time they were here, their kids were sick (they know how we feel about having sick people near zach, we asked them many times to get their kids away from him, to wipe the snot from their kids nose, to get their kids medicen) saturday zach began to act a bit "off" so they were asked to leave....however this was only a small part of what was to come, by sunday zach's oxygen requirements went up, he began coughing and a small fever crept up...
by monday he had a fever of 103.7, and was on 1.5 litters of oxygen, 3x the amount he had been on, i called several clinics and the appointment line for our regular pedi, no luck for same day appointments. we fianlly got in with zach's pedi tuesday, we spent 4 hours in the clinic, poor zach had to endure so much, he had labs drawn, chest xray, flu and rsv swab done...the results were 2 double ear infections, both that had ruptured, pneumonia in his right lung...the "good" lung, the chest xray was so bad that the doctor really battled with admitting him to the hospital, the only thing that saved us was having home health nursing. zach recieved a very strong antibiotic injection into his lil legs, and sent us home on oral/gtube antibiotics. zach is recieving lots of chest procussion therapy (CPT) extra breathing treatments, lots of nasal suctioning and is definatly nowhere near baseline, actually on 2 litters of o2 now :( were still struggling to keep him out of the hospital, and im still kicking myself for ever letting "those people" inside, to top it off, we have recieved NO apology, no call from them, my mother in law did call 3 days after he got sick to "check on him" but thats IT! seriously...do they just not get it? honestly it angers me but it HURTS that people are that self centered that they cant see beyond theirselves. they have officially been unwelcomed to come back to our house.
please keep him in your thoughts and prayers to get well soon! i miss my happy little boy.:(
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