wowzers its wed. already?? its been a crazy week, harolod has been working wayyyyy to much, drama at work has kept him from being home. hoping this weekend is different. monday we had Z-man's neuro visit, i went into the appointment armed and ready, i had zach;s medical records i have and was ready for a fight. well whats that saying...if you are ready it doesnt happen?...but be unprepared and the worst will take place? the neuro doc was totally different, he wasnt rushed, he answered questions, he didnt beat around the bush. he took his time. best of all when we left we felt validated and not pacified. from his stand, zach is making big strides! he was impressed. i love it when zachy can impress his doctors. zach's head size hasnt grown, still 46cm, been this way for i dont know how long. dr wasnt too concerned said that as long as he is progressing its not a big deal. he did tell us there may come a point when he doesnt progress anymore, but i dont believe that:). the neuro confirmed my belief that zach does indeed have cerebral palsy, he said basically what CP means is "something neurologically is causing motor control problems" and though he gave us a verbal diagnosis, he didnt put it in writing, said he didnt think the "lable" would do anything extra for him, since he is getting so much therapy and stuff now. he said that the type of CP zach has is the hypotonia type, causing him to be floppy and not the spastic type,where the muscles are contracted(something we knew) i believe he said the type was called ataxia cerebral palsy...but dont quote me.
Tuesday was mikey's 8th birthday!! we will celebrate this weekend. he had his first psych therapy on his birthday as well, it went good and we were also able to schedule zach's first visit in next week, not a moment to soon since he has now caused two callases on his fingers, 1 he had bleeding yesterday:( hopefully she will have some ideas for us. the neuro also reccomended zach seeing a psych for his abusive behavior, said its very likely a part of the CP.
Chance had another ocupational therapy today, he is making great strides in it and his therapist seemed to think he will continue to make strides, just has to warm up to the situations and undestand he is safe. very happy to hear that. she had a whole session with no meltdowns!!
Mikey is doing really well in the the ocupational therapy as well, he is practicing lots with sequencing, fine motor, and i can see it helping at home as well!! we LOVE mikey and chance's therapist, Mrs. Karen!
next week zach will also see a new dentist, im hopeful they will have some better advice for his constant teeth grinding than "its typical" he has actually ground his teeth down a lot:(
id like to leave this post with prayer requests, i just learned that there is another CDH baby, a girl, up at scott and white, she is on the heart and lung bybass machine, called ECMO, while this machine is a life saving device, its a very scary one, and one that the baby isnt allowed to stay on long, please pray her lungs will rest well enough while on that she can come off soon and kick butt and get out of the hospital!!
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