so so sorry for the delay in postings, hopefully yall havent given up on us:) things here are going well. Zach is into his 2nd full week of no overnight feedings with the pump!!! he now gets 8 bolus' of 125cc thruout the day, still getting 1000cc a day, but were able to have his last feeding around 930 at night and he sleeps without the need to be connected to the pump...what a wonderful feeling. LOVE the progress. Zach has also been making progress in the standing area, he is challenging himself LOADS, he is letting go of objects and standing on his own, for good lengths of time!!! he is so proud of himself, and we are so proud of him too!!! he has even managed while standing in front of me after i let his hands go to take 1 to 2 steps towards me on his own!!!!proud mommy moments!
were preparing for hubs to head to the field soon, orinally it was from the 1st to the 23r but has been changed, so we will get him home a lil longer. we finally got zach's referral in to see the specialists in San Antonio for the titanium rib consult. Zach had his ECI annual last week and during that time they took measurements and discovered his legs are now off by 1/2inch. :( so i guess that is more proof that the scoliosis is worse.
wed we will see a new ENT and see what he thinks in reguards to his hearing, the possibility of tubes or just the sedated ABR testing. and on friday he will be seen by the pedi psychologist again and see if after reviewing all of his scans and reports and doctor notes she has anything new to tell us or help us with his head hitting. i will try to be better about updating hope all is well.
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