Oh so much time has passed, so much to catch up on. These days I feel like were always rushing, always going, always non stop. Lots of changes have and will be going on here. Lets get down and dig into this already.....
Boys both had parties at chuck e cheese, hard to believe Mikey is 9 and chance is 6! Gosh they are growing so much! Mikey is now 4 ft 3 inches, 61lbs, chance is 4ft 1.5in and 56lbs, so as you see pretty much the same size. :) they are enjoying summer with lots of pool time, we are still doing school time, not daily but atleast 2 times a week. Chance is now reading stage 2 books, both boys are excelling in multiplication and making me very proud.
In addition to occupational therapy 1 time a week, Mikey and chance are both in speech therapy weekly. Luckily they share the same day with zach for speech therapy, so we only drive there 1 time a week.both boys see the psychologist monthly and the developmentalist every 3 months.
zach is doing well, he has his ocupational therapy 2x week, physical therapy 2xweek, speech 1x week,monthly to the psychologist, and every 3 months to the developmentalist. in some areas he seems to be making huge strides and in others we seem to be at the same spot we have been for months. zachy now weighs in at a hefty 37lbs, he is doing well with tolerating his bolus feeds and ive been adding at least 1-2 meals daily of a "blended" diet with juices, babyfood, yogarts, etc. i think this has also been a helping hand for him. zach has developed some new sounds, still non verbal for the most part, but he makes lots of vocal sounds, some days for speech therapy he does really well at imitating sounds and some days she isnt able to get zach to focus even on her. zach at least 30-40% of the time is in his own world, he is happy and content doing as he pleases (walking from room to room, looking for water to play in, banging on furniture, and licking baby wipe containers) he has a few toys, the ones that play music and light up that he enjoys and thats really all he likes. unless he is sick or sleepy he doesnt want to be cuddled, or held, he wants to go go go. he LOVES the water, that boy is such a water baby, he just loves it so much, even water on tv makes him smile and laugh. its adorable! we have gone back to houston for zachs scoliosis and are waiting until our next echo in july to see what and when they want to do, its looking more and more like titanium rib surgery, at texas childrens in houston. im still waiting on a report from the pulmonary doc there, and waiting for him to talk to the spine doc and surgeon there to figure out what the best option is.
our nursing changed, we are in HEAVEN with the nurse who is doing our primary hours, she works 40-60 hours a week and is such a sweetheart. close to our age, fun to be with, really works with zach, and so kind. we are so lucky!!
recently my brother in law decided to move to killeen, so as you guessed this is a big change and a big curve ball, he actually has a job lined up and will start july 11th, not much i can do about it, still not ready to just smile and go with it though. really just hoping we arent bogged down with them, their kids, or drama, we have enough going on here that i can barely think straight most days as it is.
Harold is ETSing from the army, in just days, gulp thats a huge change, he has been in for 11 years and now its over. im excited, im nervous, im anxious, im all over the place. the company he was trying to get hired on with is having a hiring freeze at the moment and thats another curve ball. however he is looking into other options and about to attend a 2 day job fair thing in houston with a bunch of fortune 500 companies that are looking for ex military to fill slots, it was a big opprotunity for him to be given and so we got him a suit and such clothes that he needs to have to go. time to dress the part and go out on a whim. we want to stay here, stay where our care is all set up, but we will have to see.
yea im sure there is more to update but my brain is mush....night all
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