wow, well i started this week out on a positive note, very happy go lucky and then as we wind down to today, friday i find myself in a funk. lets start with monday, Zach began to vocalize more on monday, by more i mean any, and of course by vocalize i dont mean mama or dada or baba i mean like ooooooo or a small squeal like noise, but its a noise other than crying for him. its progress.Zach had a swallow test on tuesday to see if he could infact protect his airway when swallowing, he did and we have been given the clear to get a speech therapist envolved and the GI doc said we can begin to introduce formula and solids to him, though let me tell ya with the oral adversion and probably the sensory processing dysfunction in his oral area this will be no easy task. still im up for it, i hope that zach can one day enjoy food. zach has been recieving ocupational therapy 3-4 times a week and developmental therapy 2 times a month. im trying to get physical therapy envolved and speech therapy, this could proove to be a very busy and trying time. in fact yesterday with his ocupational therapist i basically asked in a round about way how long i should expect therapy to last, dont get me wrong i know things wont change over night, and i know zach is way behind, but she told me stories of other kids and said some of them are 3 days a week for 3 years.....i think my heart sank there. just pure mental exhustion. ill be okay and we will deal but damn is all i can say. zach has been crossing his legs alot when we pick him up, his legs also bow out, some tale tale signs he needs physical therapy and probably some leg braces, this could be another indicator he will have CP (cerebral palsy)as if he didnt already have enough of these, infact ive had enough and am getting zach into the pediatrician next week (crossing fingers) to have him evaluated and to get some referrals and therapies started, i also need to get zach seen by an ortho doc for his scoliosis and have it monitored.
chance is doing well, he is roudy and as talkative as ever. he actually ran head first into mikey last night and ended up with a black eye:(. dad shaved their heads on monday and they are bald now. lol. ive been doing some "homework" with chance during the day, he seems to enjoy and he is so smart! he knows his colors, shapes, how to count to 20, some of his letters, number sequences. im just so proud of him!
Mikey has been in a mood, the medication doesnt seem to be helping at all and im about wiped out to figure out what to do for him. now he is also having trouble in school, his spelling test consisted of words like can and had and bad and hat and mat and he spelled them all basically xxaa or xoxo or aaaa??? WTH? we go over the words, he can tell me them orally one second and then not the next. he tries to memorize them and acts like he cant sound them out, doesnt understand the concept. his handwriting is in need of help! im planning on getting him some work books to help him as well. im worried about a learning disability like dyslexia or something i think its something more than ADHD. to top it off Harold is getting ready to go to korea and wont be able to come home for a year, he can take 2 weeks leave but we will have to purchase tickets for him to come home...1500ish bucks! even in case of an emergency where he is needed back ASAP we will still have to pay this amount! its insane to me. im so flippin mad! yesterday he found out he has to work another 24 hour shift tonight so its me and the kids today and tonight on our own.
im hoping to grill out tomorrow and cheer up this house! we got some ribs, onions and brauts to grill!! mmmm.
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