its that time again, its late and im tired but cant sleep im sure of it:( we had an extremely busy day to the point im shocked that we made it! what started out as a simple pedi check up for zach prooved to be much more than that. i just needed referrals, a shot of RSV for him and a small look over, what i got was a unexpected chest xray (came back fine) almost running out of o2 causing me to borrow the clinics extra oxygen tanks until we left. we got the referrals for therapy, for an ortho doc, for a bath chair, we got zach a RSV shot. what we didnt get...a flu shot as they dont have them yet, and a direct answer as to "does he have cerebral palsy?" i was told it could very well be since he did have brain injury. still no definate answers. we left there 2 hours later and drove 40 minutes out of town to get more oxygen from our home health company and then we came back into town just as mikeywas about to get out of school....perfect timing. blah. exhustion set in as i quickly got zachs meds going and got his feeding set up before his therapist showed up for session at 340.
i recieved zach's speech pathology swallow study order today in the mail, it was writen up with what the results were , it stated that zach was able to swallow the substances once gottan to the back of his mouth, they also said that "the patient" seemed to be alert, calm and had sporadic head twitches or tics to the left looking like saying "no" that seem to be involuntary....this made me stop....he has been saying "no" to us many times a day for many days/weeks now. we thought it was cute:) now it looks like it could be something else....a seziure? a movement disorder? BLAH!
Zach is Zach no matter what we are inlove with him and are so very proud of him.
Mikey also did something today to make note of. even though he has been having trouble with his writing and sounding out words, mikey made a 80 on his spelling test today! he was first given it written and he failed...words like BACK were spelled like "vax" and when the teacher gave him the test orally he got 8 of the 10 words, the ones he missed were "your" and "they" so its proving to be a processing issue like we suspected, ill bring it up to his therapist on the 8th.
Harold is on leave for 10 days, we are very happy to have him home with us to spend some quality time and get some things done, but what upsets me is the fact that the leave comes because he is preparing to go to korea, i guess no matter how many times i say it im not prepared for it.
heres to a great weekend!!
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