wwheewww im starting to feel the exhustion of every day life:(. things are just so busy around here and they seem to never stop. for the last 2 days ive had no day nurse and my day today was like this....
0600 wake up
0620 talk online to harold about 15 minutes
0630 wake mikey feed him cereal
0645 dress mikey for school
0650 dress zach and get his portable oxygen hooked up
0655 wake chance, listen to him whine and cry, dress him
0710 load everyone in van
0715 drop mikey off
0725 unload everyone out of van, rehook zach to plug in machine
0730 feed chance cereal
0740 talk on phone with harold
0900 take zach off feeding pump
0900 change diaper
1000 put zach in exosaucer/swing
1100 give zach breathing treatment, diaper change, 3 medications, bath, put him in room for nap
1100 listen to chance scream about wanting food
1120 when done with zach feed chance
1140 try to catch a few minutes tv or computer time
1200 forget rest time, gotta make calls to reschedule a therapy for mikey that was suppose to be in austin (are you kidding me....i cant get there with these kids!) after 20 minutes on phone finally get it fixed, made new appointment for in town clinic!
1230 started dishwasher, wipped down surfaces, started laundry
1pm gave zach 2 meds, new diaper
120pm gave chance juice and snack
140pm back on phone trying to get flu shots for boys
2pm got chance redressed, got zach redressed, new diaper, hooked to portable oxygen
220pm headed up to school to get mikey
245pm mikey comes out of school
3pm go vote
330pm stopped and got dinner, too tired to even think about cooking:(
4pm started paying bills
430pm therapy for zach 1 hour
530pm finished paying bills
6pm gave zach breathing treatments and 4 medications, diaper change
630pm did homework with mikey, looked at report card...not good:(
7pm finally done with bills, check email, give boys snack, and their night time meds
8pm resting, playing on computer, about to finish laundry and do floors
at 9pm ill give zach more meds, move him to his crib for the night, make sure his feeding bag has enough formula, get boys teeth brushed and in bed, try to watch a lil tv at 10pm the night nurse will come in and i need to run to walmart for bottled water and airborn. ill get to bed around 1130 and start all over tomorrow at 6am.
so yea im tired, and i cant really even get much accomplished! my house isnt dirty, but its cluttered and unorganized, and id love to be able to do more around here, just dont have the energy, i usually only get to eat one time a day, just dont even think about it. some days i have to take zach to his many appointments in temple...30 minutes away, i also have to go here a couple times a month for oxygen and medications from the compound pharmacy.thank goodness gas is going down!
in november im looking at 16 in home therapy appointments for zach, 1"school day" (teacher comes to house with lesson plans) for chance, 1 speech evaluation for mikey, 2 eye appointment for chance and mikey, a pulmonologist appointment for zach, i need to get the flu shot, and mikey the flu mist, still waiting on chance to get the shot, they dont have any in stock, mikey and chance get their behavioral appointments at the hospital, zach sees a ortho doc, and zach gets one year shots and check up as well as rsv shot.
blah! im ready for a break and were only down almost 2 weeks in this deployment.
on a good note, zach rolled over the other day on the couch on his boppy, he didnt make it completely but we helped him, he initiated it and thats great!!
HAPPY HALLOWEEN!!!!
1 comment:
Big hugs momma! Your schedule makes me tired!
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